Wow!!!! I have been wanting to come here to blog, but...lol...I guess its the procrastinate thing. Now my mind went blank to what I was going to blog. It will come to me...eventually.
I just found out that I have Celiac disease. It explains why I have been running to the bathroom so many times that now it hurts like hell just from diarrhea. It came to the point I no longer knew what to eat. Celiac disease is a gluten issue in most that I eat. So now I have to go on a total gluten free diet. A strict gluten free diet. And it will take nearly six months before my small intestines will recover. Sadly, my small intestines have been damaged due to this disease. This journey began due to my surgery in January of 2014.
Oh! oh! oh! I remember now what I was going to blog. Duh!!! Say it now before I forget.
On Sunday I caught a ride with friends to St. Augustine at Creston Beach. We arrived around10 am and the beach was just beautiful!! After setting up, I sat there for a moment catching the sun ray and heat. It was just pure beautiful. I love the beach. There is something about it- the calmness.
Then I walked down to the water...it felt good. A little cold, at first. I kept walking a little deeper, like no drop. I kept walking and um...there has to be a drop someplace. The waves were getting closer, but at the time I didn't realize the tide had already begun and so early. I wanted to take pictures so I headed back to the "camp" ( many of church family were here too). I grabbed my cell phone and started taking photos...I got closer to the ocean, the waves were now closer and stronger. I quickly took pictures and took every back and then slowly walked into the ocean.
Although the waves were more n' more and stronger, I keep walking deeply into it. It felt good to feel the waves. To jump with it, to dive into it, let it splash onto my back. Then suddenly, I felt a pull. I fought my way back out. I tried to call for him, but it felt like the waves over taken me. I prayed... "God please help me out of here."
Suddenly my mind went back to what I heard on the news...about secondary drowning. I started to struggle more and prayed. My energy level was lower now. I was now on my knees, clawing myself out of the ocean. I prayed harder. I loved the ocean but I didn't want this to happen. Suddenly, I found my self getting up and walking right out. Once I knew I was safe, I sat there to get my breath back and let the small waves splashed me. I was feeling weak due to my stroke, so the weakness didn't help and is what frightened me.
I stood up and walked to my chair and dried myself up. I felt the warm sun. I could tell by how involve the other ladies were with each other, no one was paying attention. Suddenly I found myself in the coversation...then I mentioned what happened to me.
I later found out there was a rip tide from Jacksonville down to Cocoa beach. I was thankful that my angel was there to pull me out. I know now that God does have a special plan for me. He is still preparing me for that great work.
The tide kept creeping up to the beach more n' more, higher and higher. I don't know how many times we kept having to move up. I was taken pictures that you see that even our vegetarian food became "seafood"
As I originally looked out to the ocean, I was reminded how much God loves us. Just look at that ocean. Feel the warm sun, toes hiding under the warm sand. God's love is far more than that ocean. Each wave reminded me how much God was preparing me for something great. Each of our trials and tribulations is to help teach us, show us, enable us and empower us.
I ended up riding home with some one else...only to find out she to was a RN. I was a little alarm of her son, three going on four, but looked more like a two year old and constantly walking on his toes, large calves and the arch in his back. I told her that she should have his blood checked. My fear of DMD. It seem all the symptoms were there.
So much has happened...overwhelmed. Oh I burned my indexed finger last night. This morning there was a large blister on it....I laughed that maybe now my fingerprint was gone. It doesn't hurt but feels funny.
Yesterday, was my mother's 78th birthday. Its been 44 years since she passed away, but her memories didn't die with her. I wish she was here so I can have someone to talk to.
I finished Timothy's website...finally! As I completed it, I noticed a strong rays from the sun coming through the one living room window. I walked into it and felt the sun's warmth. My eyes began to tear up. I know it was Tim..I could tell. I stood there for a half hour talking to him and thanking him for shining his light on my life. I miss him all the more...and yes, I wept.
Remembering Timothy.
www.RememberingTimothy.org
Remembering all the young men and women who battled an incurable disease...many survived far longer than they should, while many passed far younger than they should.
Duchenne Memorial Wall....a place to remember them by.
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